Resources for Adult Siblings of Individuals with Disabilities
Sibling Leadership Network
The Sibling Leadership Network (SLN) is a national nonprofit organization that provides siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
SibsNY is a volunteer organization dedicated to providing the siblings of individuals with intellectual, developmental and learning disabilities with information and support. SibsNY is the NY state chapter of the national SLN.
Sibling Support Project
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
SibNet on Facebook
SibNet is an interactive, closed group of adult siblings of people who have disabilities. SibNet siblings share concerns, challenges, joys, insights, information, resources, and strategies.
The Arc’s Center for Future Planning
The Arc’s Center for Future Planning supports and encourages adults with intellectual and developmental disabilities (I/DD) and their families to plan for the future. The website provides reliable information and assistance to families and individuals with I/DD on areas such as person-centered planning, decision-making, housing options, financial planning, establishing daily activities, and making social connections.
Sibling Advocacy Toolkit
This Advocacy Toolkit is designed to make use of siblings’ unique roles for advocacy policy. Aimed at providing siblings with useful information, strategies and tools, this toolkit demonstrates that advocacy consists of multiple layers from connecting with other siblings to visiting with legislators.
Quality Mall - Sibling Department
Quality Mall provides free information about person-centered supports for people with intellectual/developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with intellectual/developmental disabilities live, work and participate in our communities and improve the quality of their supports. The Sibling Department has resources specific to siblings of people with disabilities and is especially useful for siblings.
Family Support Research & Training Center
The FSRTC is a collaboration of researchers and organizations who are focused on synthesizing and generating knowledge about the needs and experiences of families who provide support to children and adults with disabilities across the life course.
Learn more about the sibling experience from the voices of adult siblings
Liz's Sibling Stance
Learn more about the sibling experience from a self-advocate
Resources for children and teen sibs
Sibshops are lively peer support and educational programs where school-age brothers and sisters meet other sibs (usually for the first time), have fun, laugh, talk about the good and not-so-good parts of having a sib with special needs, play some great games, and learn something about the services their brothers and sister receive. Use this link to find a Sibshop near you.
Sibteen is a place where teenage sibs of people with disabilities can connect with others who get it. It’s a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand!
Research related to siblings
Sibling Caregivers Brief
Sibling Disability Advocacy
SLN Adult Siblings Research Brief
SLN Young Siblings Research Brief
State of the States in Developmental Disabilities: Siblings of Individuals with Intellectual/Developmental Disabilities
Important Policy Information for Siblings
Frequently Asked Questions regarding the Family Medical Leave Act and Siblings
Affordable Care Act Implementation Webinar
Medicaid Regulation Changes
Books for siblings of all ages
How to Be a Sister: A Love Story with a Twist
by Eileen Garvin
The Sibling Slam Book: What it’s Really Like to Have a Brother or Sister with Special Needs
By Don Meyer
The Sibling Survival Guide: Indispensable Information for Brothers and Sisters of Adults with Disabilities
Edited by Don Meyer & Emily Holl
Thicker than Water
By Don Meyer
Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs
By Don Meyer
Riding the Bus with My Sister
By Rachel Simon
NY Sibling Survey Executive Summary
Locate a Sibshop in NY
Sibshops provide young brothers and sisters with peer support and information in a lively and recreational setting.
sibsNY is a group dedicated to connecting the brothers and sisters of people with disabilities. Our members share fun activities and social outings, as well as information and support that helps them meet the challenges of having a sibling with a disability. Located in NYC, we are seeking to expand sibsNY by fostering the development of local sibling groups and outings in communities throughout our large state. If you would like to connect with other siblings of people with disabilities in your area, join us!
There are 3 different online networks for siblings who want to connect and network with other siblings from the comfort of their own home at any time. These online communities of siblings are interactive, closed groups of adult siblings of siblings who share concerns, challenges, joys, insights, information, resources, and strategies. Sibnet on Facebook for adult siblings:
Sibnet on Facebook for adult siblings:
Sib20 on Facebook for siblings in their 20’s:
SibTeen on Facebook for teen siblings: